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Wednesday 22 May 2019
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Sobi supports The Rare Project to increase awareness about rare diseases

To highlight Rare Disease Day 2016 on 29 February, Swedish Orphan Biovitrum Ltd. (Sobi) is proud to sponsor 'The Rare Project', a project initiated by the not for profit organisation Same But Different.


'The Rare Project' is an online and real world photo exhibition encouraging people to get to know young people and children with rare diseases for their personalities and not their condition. Through photography the personalities of young people and children with rare diseases are showcased. The photographs are the work of Ceridwen Hughes, the founder of Same But Different.


"We are proud to support the raising of awareness of rare disease through collaboration on inspirational initiatives like this one. We aim to place patient value at the heart of what we do. The inspiring stories that patients and families are sharing in 'The Rare Project' only energise us further to strive to do more for rare disease patients," said Neil Dugdale, General Manager for Sobi Ltd.


'The Rare Project' is supported by several UK charities including Rare Disease UK, Genetic Alliance and Climb, (Children Living with Inherited Metabolic Diseases) as well as Big Lottery Wales and Sobi.

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